To all my fellow asthmatics-Do you look sick?
When asthma is such a hidden disease, how many of you actually look sick with yours? Do we give a false impression of being a well person, or is it possible to tell that there is something going on inside that just isn’t right, and just by how we look?
Does having severe asthma mean that I have to act in a certain way, do specific things, wear special clothes , so as to make myself stand out…….No, I think not!
But I do get a bit fed up sometimes of people questioning things like my parking in a disabled bay. Today, yes, I was dressed in my new Christmas coat and Uggs, and I was actually wearing my oxygen in public for once …but along came the Spanish Inquisition… “but you don’t look ill” Do I need to wear a badge that says “don’t be fooled by the fact that I look kinda normal, I’m actually quite sick!”?
Then there is the other side to this discussion. Why does my school like to say things like “but you’re really well now we’ve got you a scooter” Gee, if severe asthma can be ‘cured’ with a scooter, they’d be flying off the shelves like hot (GF) cakes!
And the number of comments I get when accompanying the services-“how lovely to see you so well” Memo to self-play the organ more often, it gives this wonderful false impression of health and beauty!
Actually readers, I do try incredibly hard to not be the one who looks ill. To me, to look funky, bright, young and fun, makes me feel that way inside. It doesn’t cure my lungs of a single cough or wheeze but it can sure give that wonderful false impression of being a lot less sick
My final thought of this entry is….if happiness and illness are a connected state of mind…
…So who said you can’t be happy and ill?
By the way, I just blew this 176-like hello bottom of my yellow zone,. If J saw this he’d be making me a double neb. OK, in fairness I’m pretty tired today: done some cleaning, been swimming, didn’t really sleep that great last night and I’m now the tiniest bit tight but I so don’t feel like 176 should make me feel. Oh great-so now I have a false impression of being a lot ‘weller’ than I really am. But that’ll be another blog post…..
So until I write that one…
…I sure hate it when the meter lies, don’t you?