….That’s 30mg of Prednisolone to those of you who understand lung jargon!….
And six 5mg tablets is a good thing as it means-like my side bar has said since yesterday, I am starting to reduce. Rather a large reduction for me, as I usually go down one 5mg tablet at a time, but I seem to have stuck at this level of yellow zone plateau for long enough to warrant a quicker than usual reduction. My crazy philosophy is that the quicker I get back to my baseline dose, the less chance of my lungs waking up and noticing. Absolutely barmy by any Doctor’s standards but I do try to ‘mind over matter this drug’. So what if I’m still Air Trapping a heck of a lot, this asthma purgatory isn’t going to go away but sitting on a 40mg daily dose of the red monster pills. I’m not burying my head in the sand here either-I’ve been in this situation many times before and I’ve spoken to my Docs this week, and have been given the OK to reduce if I feel I want to try to, plus I can stay on increased oxygen to help with the inevitable SOB I’m no doubt going to be feeling.
So whatever! 24 hours in-I’m still scoring 70% PF and as I’m such a chronic yellow zoner, that’s still very acceptable!
But the cramps and aches and pains have already got me. My knees, calves and fingers feel like I’ve been out in the snow too long, and I’ve got that whiff of a fluey achey feeling this morning. Not a cold coming, but just how a Pred reduction makes me feel. Gatorade and Kettle chips to the rescue!
If I get through the day with some degree of stability in the lung department I’ll be mighty happy-the plan is to try a swim this afternoon, because usually 48 hrs in I have to start toughing things out a bit more so tomorrow might not be as possible.
The first 10 mg drop is always hard-something of a shock to the scaffolding system. Pred is like lung scaffolding for me, and I know I’ll feel weak and wobbly when it comes to trying to breathe with less of it-but hey! my mind is strong and I’m tougher than you think.
So the current plan is to stick at 30mg this week and reduce another 10mg next weekend.
Crunch time (if I’m lucky and don’t pick up anything in the lurgy department), will come at the 20-15-10mg stage. I’d like to think that even though it’s definitely Autumn and Winter is coming, I can still get down to my baseline dose of 10mg. Although this time last year I was stuck at 20mg for a long time. If that happens again, I wont beat myself up-I’ve achieved 10mg for most of the Spring and Summer of this year. The whole idea is that if my bones are going to stand half a chance of not deteriorating any more, I need to be at my lowest possible dose for my lungs to cope. I have no Adrenal issues, I am relieved to say, so there is always the possibility of being off the oral stuff totally. I’m game for it.
We all hate the Pred. It saves lives but it messes you up in so many other ways. So whilst I go through the mental and physical craziness on it…
….I guess I’ll just keep polishing my horns!….