The Royal Wedding!

April 29, 2011

….Well, the day is finally here!….

Congratulations William and Kate. We all have much to cheer about. The Nation has raised it’s morale and we have a National Holiday today to celebrate with you.

We all wish you a long, happy and stable marriage.

….Rule Britannia….


Pimping that Physio…!

April 28, 2011

….I don’t know if you’ve come across this on the internet yet, but….

((click the Watch on YouTube bit!))

It took us all by storm on Saturday Night on Britain’s Got Talent!

And last night when J was replaying it, had me laughing so much that it was the best lung physio I could be doing at the moment! Yes, Little blonde me was pimping that physio and doing the best drainage yet after laughing my lungs off!

So, what with taking 3 of these 500mg Cefalexin a day  for 2 weeks:

…and whacking the Pacific Ocean’s worth of 6% and 7% ((when it comes!)) hypertonic saline nebs, I’m going to clear my super deep Staph Aureus quickly-I hope!

….But until it goes, I’m pretty much holed up at home on bed rest, and I can’t speak for coughing….

Happy Easter! Happy Pesach!

April 24, 2011

…..Wishing Everybody a really Happy Holiday Weekend, whatever your religious outlook on life…..

It’s Easter in the Christian Church, and actually in the Orthodox Church at the same time. And it is currenty Pesach in the Jewish Calendar. So I wish all of you a great Family style weekend of celebrating.

And whether it be you are Rejoicing in our Risen Lord or commemorating the Ancient Israelites being freed from Slavery out of Egypt, we are all proving we can all live together in religious harmony in blog-land.

Have a good one, my Friends.

….But don’t get sick from too much chocolate and mind the bad smog in the UK and don’t forget your allergy meds if you’re a seasonal sniffler!….

Bad timing lurgy!

April 23, 2011

….So my cold went South….

Such an annoyance. I’ve kept J awake and he’s been on an exhausting Late shift for a few days. I’m hoping I haven’t passed this to Anna-Bell who has been sneezing A-LOT (mind you, the whole world has hayfever atm!) People are running out of sympathy and disbelieving me when I say I have a ‘rotten cold’ as they are all trying to tell me it’s ‘hayfever’.

S-O-R-R-Y! I know my lungs and I’ve had more than my fair share of lurgies to know this ain’t just a seasonal sneezing thing. Plus I have been running a temperature all week-very, very unlike me.

It’s the Easter Holiday weekend and with Easter being so late this year it’s pants that I’m feeling so rough right when I need to be “all batteries recharged” and ready for school again on Wednesday. I suspect much of this is to do with the fact that with ABs op I have been living off of adrenaline for the last few weeks, and was flat out exhausted from the end of term but didn’t really get to recover from that before we were dealing with our doglet. Never mind.

So it’s Action Stations here. I’m having to fire the “Added on Extras” to my regular “Anti Asthma Arsenal” now.

  • Whacking the Pred up to 40mg from NOW!
  • Whacking the emergency Antibiotics from NOW too!
  • Doing 20mins of Autogenic Draining twice a day (very boring and uncomfortable and exhausting)
  • Nebbing the 7% hypertonic saline that my Physio prescribed on Tuesday twice a day.
  • Sinus Douching twice a day with Montesol (hefty saline and Dexpanthenol)
  • Taking my Carbocisteine 3 times a day from now on, with the extra dose being the liquid form at lunchtime.
I knew this would happen. My Physio on Tuesday said to me I was crackling and sounded really nasal and I knew on Tuesday I had a cold. And like all  gravity, it went South.
And we have a smog alert over much of the UK at the moment, so what chance have I got of shaking this off easily?
….Bad timing lurgy or what?….

Summer Smog!

April 22, 2011

….The nice people over at DEFRA have issued this warning for London, for Easter weekend….

”The high pressure system persisting over the UK is forecast to bring warm and still conditions to the UK over the Easter weekend. These conditions mean it is likely that the UK will experience a high pollution episode this weekend.

Elevated levels of PM10 and ozone reaching high or moderate are expected from now until at least Sunday. The forecast is therefore for high pollution for PM10 and ozone across England and Wales, and low for other pollutants over the weekend.

Some people are more sensitive to ozone than others and may begin to notice an effect on their breathing. People with asthma are not necessarily more sensitive but, if affected, can use their ‘reliever’ inhaler. The public are urged to take sensible precautions such as:

  • avoiding exercise outdoors in the afternoon can reduce exposure to ozone; and
  • avoiding making unnecessary short car journeys wherever possible can reduce the formation of ozone.”
….Please be sensible. I already have a nasty summer cold so don’t want to add smoggy lungs to the equation. Our plan is to stay in and watch some films and catch up with the house!….

More Moderately Bad Air Today!

April 18, 2011

….In spite of it being warm, London is under a blanket of thick cloud, making it airless, heavy, polluted and muggy….

My AirText App has sent me a moderate air pollution warning text every day for about the last week. See all the yellow-and Ruislip right in the middle of the picture. How on earth 35,000 people ran the marathon in this air yesterday, I just don’t know!

No wonder I’m feeling rather SOB. About 3 weeks ago I had a couple of red texts meaning high pollution. Those days were just awful. I have no reason to go outside today, apart from to water the dog and that will be my limit. Since all the hype about global warming and climate change, we are really proving how the SE of the country is now living under a rain shadow. Where are the dense clouds that bring rain as they aren’t here atm?!

….Please will it rain-my grass needs it too….


April 15, 2011

….Or maybe that should be “Natter with a Nutritionist!”….

So it was 9:30 AM on my birthday morning and I was just thinking about getting ready before my coffee party and my Parents arriving, and the phone rang. Turned out it was one of the Dieticians from the Royal Brompton Hospital phoning me for a ‘then and there’ consultation. She started by asking me my date of birth so I said “today” and that sort of made her laugh she asked if I could bare to have a phone consultation on my birthday and I said “yes”! She understood that is virtually impossible for me to get to a clinic appointment at the moment. They only hold Dietetics clinics once a month on a Thursday morning and that’s no good because of course I am always working.

So she asked me lots of questions about what I eat and my typical breakfast, lunch, dinner, snacks, drinks etc, and she tried to calculate quickly how much I eating calorie-wise, fats-wise and with my height and weight what might bmi is.  Apparently it is around 16 which is really much too low. She then suggested that I need about an extra thousand calories a day on top of my normal food intake, but I just don’t have the appetite or stomach space to eat that much more and therefore I need to replace this with supplemental feeding. This is what I have been doing for the last 5 to 6 years although for the last three months I have been off my feeds because I have been trying to reduce my cholesterol and concentrating on eating low-fat

Whilst this has been beneficial in reducing my cholesterol from 6.99 to 5.14, it has also reduced by weight by about 5 kg. We went through all the things that I should be eating ie more of the good fats like monounsaturated fats, olive oil, rapeseed oil almonds and walnuts. And the things that I used to eat on a high fat diet before I realised my cholesterol was bad, such as butter, whole milk and the saturated fats. I do like and eat a lot of oily fish fresh tuna, salmon, and I’m now going to try and have sardines and I’ve been told to have as much honey, jam and sugar as I can because that is good calories but no fat.

And at last I can have my supplements re-added to my prescription and therefore my diet. I used to have Scandishakes and Ensure Plus milkshakes but they have a lot of fat in them so I’m now going to have Ensure Plus Juce-lemon and lime flavour as that is my favourite.

They are pure carb calories and sugar calories but no fat and I am going to be having two a day of those between meals. We are also going to take away my Pro Cal shot as that is all fat, and replace it with  three shots of Polycal Liquid which will give me 270kcal per 100mls.  

If I have three shots of that a day it will give me an extra 300 calories and the two  Ensure Plus Juces will give me another 660 cal so that is very nearly the extra 1000 calories that I need. 

So why do I need all these extra calories unlike everybody else when I’m on long term Pred? And, as you know, I’m the opposite of overweight. Plus I’m not exactly over active either- in fact I’m pretty sedentry at home in my own environment and I also ride around on Scootie at school as I cannot walk large distances because I get so short of breath.

So why am I burning all these calories?

Well, My body seems to react in the opposite way when I’m on Pred. The drug seems to cause me to have a diminished appetite.  and I actually prefer to eat things like salad to biscuits and cakes anyway. However I have a bad cough I have coughed  constantly for about the last six or seven years and because I cough so much and my cough is always a productive one, I am burning up a great deal of energy and calories just coughing and producing sputum. 

Have you ever wondered why severe COPDers are often very thin?

Well that’s me. That’s my lungs. That’s where I do fit the mould. 

The steroids have also caused a degree of myopathy-muscle weakness and wasting, so my body has changed for the thinner not the fatter. 

I wish it would all go away but of course it’s not going to. I’ve enjoyed eating more normally for 3 months, bit I’m looking pretty darn scrawny now. 

And my dietician thinks I’m probably one of the people with a predisposition to high cholesterol unless I can stick to eating the right things. Hence the fact that I can’t just go back on my High Fat butter dairy ice cream regime.

We will test my cholesterol again in another 3 months after starting the new supplements. Hopefully I will gain and maintain a little weight. That in turn will improve my Lung Function and immunity to germs. I seem to have gone down with every bug going recently because I’ve just got no reserve. 

….But first my Dietician has to write to my GP telling her all this, and that she’ll need to prescribe my supplements. I hope this happens without there being a spanner in the works!!….