Wednesday Weevils Wobble!

May 26, 2011

…..I wobbled after school  last night…..

Couldn’t get out of that after school Faculty meeting yesterday afternoon quick enough-was pelting down the corridors of doom on the top floor on full speed-even poor Scootie was puffing!

I got home and thought I was going to faint. That weird blood sugar low feeling when you come over all shaky and sweaty and very peculiar feeling. Checked my O2 SATS: 83%. That explained it. I’m also now almost at baseline Pred so this is my wobbly crucial time too. Texted Julian-mini riot act was read to me-put your O2 on now and sit still. So that I did. An initial 10 mins of 5L and then down to my rescue me 3L level.

No walking AB slowly round the block so I let her run amok chasing pigeons in the garden whilst I sat on the bench with E.T. in the shade and breathed in deeply. And had a cup of tea and some marmite rice cakes to pick me up off the floor, energy wise.

I used to get so air trappy on Wednesdays as it is such a hard teaching day for me and I back up so much stale CO2 talking like that-add to that a rehearsal p5 and a meeting and I was literally on my knees.

I couldn’t even detect the pollen or the ash cloud-double weirdness-it was all just my dysfunction not that of the air outside for once.

Going to have to check my enthusiastic pace today-I’ve got my band and some musicians playing for a Eucharist first lesson and have to keep going for another after school session-detention duty.

 …..I really don’t want to come home in that fit for nothing state again today!….

((Half term in 2 days and counting!))


Twizzle: The dog with No Talent!

May 23, 2011

…..This act was on Britain’s got Talent on Saturday….

Having just watched it again, we are still laughing. And laughter is the best medicine of all!

Click here! (Can’t embed as it’s an ITV clip!)

The funniest moment was when Michael Mcintyre, one of the judges and a very funny stand up himself, said “you do not want to train the other dog!”

Oh Jeez-the effort of buying all those inflatable cacti. It cracked us up!

….Luckily Anna-Bell is obedient and Julian is training her. I couldn’t cope with Mexican Mayhem  and lung mayhem all day long!….

Results and Verdicts

May 17, 2011

…..Had my return session at RBH yesterday and came away feeling quite happy…..

Luckily, there hasn’t been too much change. Now remember, I’m talking bones and lungs here! I hadn’t had a DEXA for a good 2+years, and I must be doing something right as my bones have only decreased by about another 1%. This is a massive phew! for me. I know that Fosamax is very slow to work, or rather that bone density is very slow to build, but maybe after being on the drug for nearly 6 years things are now working positively. And the same for the high doses of Calcium plus Viatmin D that I take daily. Not that my asthma directly affects the bones, we all know it’s the dreaded Pred because of my asthma  that has caused me the osteo whatever side affects.

So that’s one positive result. The other was that I blew a really good (for me) set of lung function tests and therefore we are not going to move my base line and are still going to us my personal best PF as being 360. Last Tuesday I’d blown around 300 off meds for 4 hours and repeated this blow yesterday with my physio who also did a reversibility with me and I increased it to 330 which is about the best blow I have done in yonks! Plus my physio also gave me some good tips for dealing with my SOB in the evenings. Something I really suffer from.

My Consultant said my lungs were the clearest he’d heard them (!) and this being a few short weeks after I’d had another nasty bout of asthma plus infection, mid April. He attributes this to the hypertonic saline and autogenic drainage routine that I am now so very much in the swing of. The extra 20 minutes of lung clearing time twice a day is seemingly being positive.  I got over  that infection in 3 weeks rather than the usual 6. Plus we hit it with the right anti biotic, knowing I culture Staph Aureus.

Whilst we cannot crack the asthma: it’s there, it’s a part of me: maybe we can help the constant gunk and deep seated infection issues. I am certainly far less junky gunky at the moment though. Plus I am washing my nose out a whole lot each day-as routine. Another 10 minutes of dejunking and degunking. Wonder where has my free time gone these days?

Perhaps there is another reason as to why I do get these repeated infections-he isn’t sure, other than the bit of bronchiectasis I have, he thinks maybe my low white cell count (0.9) has something to do with it. Maybe my immune system is being knocked out by the pred? or maybe there is something else? I had a bunch of bloods done yesterday testing for immunoglobulins. I am sure everything will be fine though and it’s just because I’m a teacher 3 days a week and work in a germ factory that I get sick, often!

There is stuff to work at, besides the phyio though. I have to get my Pred back down to my baseline of 10mg and I’m currently reducing slowly and am at 25mg. This is only because it is allergy season and I’m quite twitchy, plus I ache like crazy and feel zapped of all energy-all pred reduction symptoms as far as is normal for me.

I also need to do add a few prophylactic med doses in that I haven’t necessarily always been taking. That idea of “keep what you have got lung wise open as best you can and you wont get infected?!” LOL, Andy! So one more lunchtime Atrovent neb has been added and a midday dose of mucodyne for always and not just when I’m junky/infected. Great!

And they want to see me with my next infection to run bloods and repeat some of the LF tests that will show up how bad I am during an asthma/infection exacerbation.

…..But if I can stay well, my next routine clinic isn’t now until August. That’s good news too!…..

International Chihuahua Appreciation Day!

May 14, 2011

….We’ve had World Asthma Day, It’s been ME Awareness this week, and May is Cystic Fibrosis month….

But did you know: famous chihuahua® has hereby declared May 14th an international day for chihuahua appreciation, so if you have a chihuahua, give them a nice little pat on the head and lots of kisses to let them know how much you appreciate them!

Our lives have been changed one million percent for the better since we adopted Anna-Bell on January 28th. We are totally in love with our little chihuahua daughter. She is everything we have ever wanted in a dog. We are now a Family.

And I know my fellow Chihuahua owning friends totally agree with me.

How could you not agree. Just look at that face!

And that paw!

And our little Princess asleep in the sun!

….And even if you haven’t got a chihuahua, you can join with us in loving and appreciating ours!….

12 of 12: May 2011

May 12, 2011

…. So here follows my series of 12 photographs taken throughout today, the 12th of  May, 2011….

So what’s new this month then? We are currently enjoying the most fantastic weather-hot temperatures and no rain. The garden is looking beautiful and very ahead of itself and all our vegetables are planted and growing happily. AB continues to flourish. She is 9 months old now and we have had her 15 weeks! She has completely healed from her ‘op’ last month and you can hardly see her scar.

Anyway: today is a school day for me so I have no idea how interesting these pictures will be. But here goes!

1  ) 5.20am. What do they say about sleeping dogs? let them lie? This little girl would sleep for England. I left her until 6am when I got her up, took her in the garden, and then she went back to bed with her Daddy upstairs!

2  ) So this was our garden at 6am this morning. Beautifully green as we do water the lawn and run the irrigation, with practically every flower ahead of itself and ready to pop open signalling summer.

3  ) 7.45am. I left AB asleep in some crazy position under the duvet with Julian!

4  ) 7.55am. Arrived at school and found the gates were broken again and chained together.

5  ) 8.02am. Therefore I had to waste 7 minutes driving round to the other entrance just to get in to school.

6  ) 9am Period 1. Gamelan with Year 7. I had to rearrange the room so we could do practical work.

7  ) Starving and needing sugar. Tucked into some Haribo Cola bottles-around 12.20pm, I think.

8  ) Crazy day. Hadn’t eaten so the second I got home, at 3.20pm I made a bread buttie (bread and butter sandwich!)

9  ) 4.10pm. And then I took AB for a little walkette round the block.

10  ) 4.50pm. I crated AB whilst I watered the front lawn and she had a nice nosey look at everybody who walked by and the occasional Grrr Woof!

11  ) 6.40pm Picked Julian up from the station under a beautiful blue and warm evening sky. He went in to work this afternoon on overtime, for a meeting .

12  ) Dinner! 7.45pm. Roasted BBQ chicken breast, colcannon Irish mash, and green vegetables. Very tasty indeed!

Right, well we are settling down to watch the second Semi-Final of the Eurovision Song Contest now!

Hope you’ve enjoyed my diary day, 12 pictures taken on the 12th of the month.

Night, night from us here, and see you next month!

….If you’d like to read other bloggers’ 12 of 12′s, go to Chad Darnell’s Blog.

An afternoon of Tests!

May 11, 2011

…..So Tuesday afternoon was spent up at the Royal Brompton Hospital having Tests….

Firstly: I had to have my DEXA scan redone as it is 2.5 years since the last one. The amount of Prednisolone I am on permanently and the amount my usage increases during exacerbations deems it necessary to have these scans. My last one showed 29% loss in my lumbar spine and 15% in my hips. I am on Calcium, D3 and Fossamax long term too so I hope this loss has been stabilised.

Funnily enough, it was a job to find comfortable loose fitting summer clothing that had absolutely not metal in it!

Secondly: I had to do some up to date full Lung Function tests. We are aiming to find where my baseline is these days. I had been instructed no Seretide 500 (Advair) this morning and wasn’t allowed a neb for 4 hrs beforehand. Originally we were going to get me in and do it off meds but it was deemed too risky in the light of recent lung infections and asthma episodes. I’d been feeling pretty air trappy all night and was quite uncomfortable but I absolutely gave it my best blows as I am eager to find what is happening to my lungs too. I will get the results next Monday in clinic. It was torture. I got so tired and the glass box was totally stuffy and airless. They finished with regular Spiro and I’m not joking, my technique was crap. They tried everything to get me to do a decent huff but I was just totally malco-ordinated by this stage-an hour of tests left me shattered.

Here I am in the room doing the tests, and in that horrid glass box!

Gosh. So after the scanning, blowing and travelling I am pretty whacked out. And I’ve got school now. And I’m already not feeling that great.

…..I await all results, eagerly-I actually have the envelopes but they are sealed-d’oh!…..

Refreshed by Rain!

May 7, 2011

…..As forecast, last night we had a thunder storm…..

I am not usually a wet weather person-not that this is ‘wet’ though, the sun is already back out, heating the water droplets and creating nasty, nasty lung-hating humidity. Bleugh. This feels like Miami after a storm!

But we needed that storm-with nothing measurable for the last 2 months, it was the first decent downpour we’ve had. Our side of London is now in a rain shadow with this totally obvious climate change.

And this is why I am happy it rained:

  1. I didn’t get a pollution air text last night!
  2. The pollution that was so apparent is much, much less today-you can’t smell or taste it like you could in the drought.
  3. The temperature has dropped for the moment (although apparently, 80F is forecast for much of the coming month!)
  4. My back lawn got watered for the first time and I didn’t have to work on watering the front lawn like I have been doing daily for the past week!
  5. My antsy angst filled lungs feel like they have had a temporary reprieve from the horrible heat we’ve had.
  6. The whole house is cooler as I’ve flung open every window back and front and given it a total air change. Bye bye backing up CO2!
  7. The pollen has been dampened. Bye bye sneezing allergies for the day!
  8. The storm happened overnight so my lungs and head were not affected by the atmospherics or change in pressure. Phew!
  9. The garden looks beautiful.
  10. Julian has been out there with his macro and has actually seen nature in the daylight now he is off Nights!
And here are a selection of his 105 mm macro photos taken this morning after the refreshing rain.
Rose Swan Lake
Day Lily Leaves
…..Better air, and natural beauty, Truly refreshing for all eyes and lungs…..