…..So Tuesday afternoon was spent up at the Royal Brompton Hospital having Tests….
Firstly: I had to have my DEXA scan redone as it is 2.5 years since the last one. The amount of Prednisolone I am on permanently and the amount my usage increases during exacerbations deems it necessary to have these scans. My last one showed 29% loss in my lumbar spine and 15% in my hips. I am on Calcium, D3 and Fossamax long term too so I hope this loss has been stabilised.
Funnily enough, it was a job to find comfortable loose fitting summer clothing that had absolutely not metal in it!
Secondly: I had to do some up to date full Lung Function tests. We are aiming to find where my baseline is these days. I had been instructed no Seretide 500 (Advair) this morning and wasn’t allowed a neb for 4 hrs beforehand. Originally we were going to get me in and do it off meds but it was deemed too risky in the light of recent lung infections and asthma episodes. I’d been feeling pretty air trappy all night and was quite uncomfortable but I absolutely gave it my best blows as I am eager to find what is happening to my lungs too. I will get the results next Monday in clinic. It was torture. I got so tired and the glass box was totally stuffy and airless. They finished with regular Spiro and I’m not joking, my technique was crap. They tried everything to get me to do a decent huff but I was just totally malco-ordinated by this stage-an hour of tests left me shattered.
Here I am in the room doing the tests, and in that horrid glass box!
Gosh. So after the scanning, blowing and travelling I am pretty whacked out. And I’ve got school now. And I’m already not feeling that great.
…..I await all results, eagerly-I actually have the envelopes but they are sealed-d’oh!…..