…..The lung disease community lost another bright advocate, patient, transplant recipient, and above all, friend, yesterday…..
I knew Rachy in person since 2005. We had been in the Royal Brompton Hospital several times together. Me with my extreme asthma and Rachy with her ILD (interstitial lung disease).
Several times when I was quarantined due to MRSA she left chocolate bars and notes for me outside my door. We became good friends whist ‘in’ and regular online friends on Facebook whilst ‘out’.
Her extent of lung disease was complicated and extreme. My asthma is humbling in comparison. She underwent a double lung transplant but suffered complications and rejection. It bought her another year and a half, but for the last 3 weeks we have known Rachy was gravely ill and awaiting her stairway to heaven.
She is up there now, breathing freely and deeply, out of pain, out of suffering and smiling from one side of her face to the other. There was no greater advocate than Rachy for organ donation. If we could all do one thing to make her life worth it, it would be to sign the organ donation register. It only takes a minute. Please sign your register, whatever country you are from.
The UK one is here: Please Register NOW!
Rachael’s life was Anything But Ordinary. Her blog can still be accessed. It truly is moving reading. Her epitaph should be her own words: “I’ve been through more in my 23 years of life than I care to even admit”
…..Rest in Peace, Rachael. You are the brightest star shining in those new Angel Wings. We will all miss that cheeky smile…..