I’m not just a poorly person, I’m first and foremost a musician, and there’s no denying it. A general creator of noise playing the piano and church organ.. An accompanist, examiner, composer and arranger. That is my life’s passion.
I teach in Junior High, the History of Music, but part time, because of my health problems. It’s quite enough. My 3 days at school result in my 4 days resting and recovering.
But I work really hard to keep myself as well as I can, realistically, through physio and PT for my lungs . Before my asthma turned so antsy on me, in 2005, I used to be able to run half marathons. But now on a bad day, I can’t even walk round my house. But I try to go swimming every day that I am able. Sometimes it’s a battle between myself and the pool and the water almost wins. But I am always rewarded by a sauna at the end which is just about the best therapy I can get.
I am a ‘We’. I have everything to thank my J for. He is the most wonderful partner anybody could dream up. And a very understanding carer. He’s been through this rocky road with me, every pothole and bump, and I’m not just talking about the drives up to the Racetrack Playa or The Wave! J is my scaffolding. He does literally prop me up every day.
I have an existence that is largely centred around doing my drugs (so eloquently put) at certain times of the day, eating a vast quantity of high calorie food supplements and sticking religiously to a strictly Gluten Free diet.
Until my resolve buckles and the forbidden food passes my lips…..Pizza….and I suffer so badly for my sins!
What else. Well. I have ambitions, just like everybody in this world. But maybe mine are slightly smaller in scale, or on a shorter timescale. There are places I’d like to go to, but most are out of the question. Travelling with these lungs takes some mighty careful planning.
I’m lucky that as a one time Californian, I have the joy of returning there several times a year. I’m a SoCal girl at heart, and that sunshine on my shoulders really does make me happy. Not in any ways detracting from the extreme health benefits of my breathing in warm/hot/scorching dry desert air.
I’m also really lucky that 11 years ago J caught my California bug and now we travel with my lung gear and his photography equipment!
So my ambitions, simply to live another day one day at a time, as fully as I can, breathing as deeply as I can. Surrounded by the love of my family.
And maybe whizzing down the corridors of life on my little Scootie ramming just a few more ankles!
Visitors to my blog
My LUNG SERENADE of the Day!
O2 usage: Day time 2L Pulse. Night time 4L Constant
SWIMMING Total for 2011
FIFTY ONE: Swim and Sauna
My Upcoming Life Schedule
WEDNESDAY: School. Choir before school then Junior Orchestra p1
THURSDAY: School from 11.30am
FRIDAY: School. Staff Training.